European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards

Feeney O, Werner-Felmayer G, Siipi H, Frischhut M, Zullo S, Barteczko U, Ursin L, Linn S, Felzmann H, Krajnovic D, Saunders J, et al. (2020)
DEVELOPING WORLD BIOETHICS 20(1): 27-37.

Zeitschriftenaufsatz | Veröffentlicht | Englisch
 
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Autor*in
Feeney, Oliver; Werner-Felmayer, Gabriele; Siipi, Helena; Frischhut, Markus; Zullo, Silvia; Barteczko, UrselaUniBi; Ursin, Lars; Linn, Shai; Felzmann, Heike; Krajnovic, Dusanka; Saunders, John; Rakic, Vojin
Alle
Abstract / Bemerkung
The effective collection and management of personal data of rapidly migrating populations is important for ensuring adequate healthcare and monitoring of a displaced peoples' health status. With developments in ICT data sharing capabilities, electronic personal health records (ePHRs) are increasingly replacing less transportable paper records. ePHRs offer further advantages of improving accuracy and completeness of information and seem tailored for rapidly displaced and mobile populations. Various emerging initiatives in Europe are seeking to develop migrant-centric ePHR responses. This paper highlights their importance and benefits, but also identifies a number of significant ethical, legal and social issues (ELSI) and challenges to their design and implementation, regarding (1) the kind of information that should be stored, (2) who should have access to information, and (3) potential misuse of information. These challenges need to be urgently addressed to make possible the beneficial use of ePHRs for vulnerable migrants in Europe.
Stichworte
bioethics; electronic personal health records; ethical; legal and social; issues (ELSI); medical records; migration; values; vulnerabilities
Erscheinungsjahr
2020
Zeitschriftentitel
DEVELOPING WORLD BIOETHICS
Band
20
Ausgabe
1
Seite(n)
27-37
ISSN
1471-8731
eISSN
1471-8847
Page URI
https://pub.uni-bielefeld.de/record/2942733

Zitieren

Feeney O, Werner-Felmayer G, Siipi H, et al. European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards. DEVELOPING WORLD BIOETHICS. 2020;20(1):27-37.
Feeney, O., Werner-Felmayer, G., Siipi, H., Frischhut, M., Zullo, S., Barteczko, U., Ursin, L., et al. (2020). European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards. DEVELOPING WORLD BIOETHICS, 20(1), 27-37. doi:10.1111/dewb.12240
Feeney, O., Werner-Felmayer, G., Siipi, H., Frischhut, M., Zullo, S., Barteczko, U., Ursin, L., Linn, S., Felzmann, H., Krajnovic, D., et al. (2020). European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards. DEVELOPING WORLD BIOETHICS 20, 27-37.
Feeney, O., et al., 2020. European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards. DEVELOPING WORLD BIOETHICS, 20(1), p 27-37.
O. Feeney, et al., “European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards”, DEVELOPING WORLD BIOETHICS, vol. 20, 2020, pp. 27-37.
Feeney, O., Werner-Felmayer, G., Siipi, H., Frischhut, M., Zullo, S., Barteczko, U., Ursin, L., Linn, S., Felzmann, H., Krajnovic, D., Saunders, J., Rakic, V.: European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards. DEVELOPING WORLD BIOETHICS. 20, 27-37 (2020).
Feeney, Oliver, Werner-Felmayer, Gabriele, Siipi, Helena, Frischhut, Markus, Zullo, Silvia, Barteczko, Ursela, Ursin, Lars, Linn, Shai, Felzmann, Heike, Krajnovic, Dusanka, Saunders, John, and Rakic, Vojin. “European Electronic Personal Health Records initiatives and vulnerable migrants: A need for greater ethical, legal and social safeguards”. DEVELOPING WORLD BIOETHICS 20.1 (2020): 27-37.

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