EQ-5D-Y as a Health-Related Quality of Life Instrument for Children and Adolescents: The Instrument's Characteristics, Development, Current Use, and Challenges of Developing Its Value Set

Kreimeier S, Greiner W (2019)
VALUE IN HEALTH 22(1): 31-37.

Zeitschriftenaufsatz | Veröffentlicht | Englisch
 
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Abstract / Bemerkung
Objectives: Interest in the measurement of health-related quality of life (HRQoL) in children and adolescents has been increasing, and appropriate instruments are required for this target group. This article focuses on the EQ-5D-Y instrument, presenting an overview of its characteristics, development, and current use, and includes a discussion of methodological and conceptual issues related to the valuation of child health and the development of an EQ-5D-Y value set. Methods: This article brings together the experiences of the research team that developed and validated the EQ-5D-Y, supplemented by information derived from EQ-5D-Y study registrations on the EuroQol Group's website. Results: EQ-5D-Y is a child-specific and age-appropriate measure of HRQoL. Study registration data show that the instrument's use has steadily increased since its first publication. It has been used in various types of studies and in different disease areas. Currently there is no value set for EQ-5D-Y, and so its use in cost-utility analysis (CUA) is limited. There are methodological and conceptual issues that affect the design of valuation studies for child health. Issues that are discussed include the need for separate value sets for children and adolescents, the choice of appropriate reference samples and valuation techniques, and the framing of the tasks. Conclusions: Research on EQ-5D-Y and its use has increased in the last years. Further research is required to clarify methodological issues regarding health state valuation in children and adolescents. This will support the development of a value set for EQ-5D-Y and the use of EQ-5D-Y in CUA. Copyright (c) 2019, ISPOR-The Professional Society for Health Economics and Outcomes Research. Published by Elsevier Inc. This is anopenaccess article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
Erscheinungsjahr
2019
Zeitschriftentitel
VALUE IN HEALTH
Band
22
Ausgabe
1
Seite(n)
31-37
ISSN
1098-3015
eISSN
1524-4733
Page URI
https://pub.uni-bielefeld.de/record/2933521

Zitieren

Kreimeier S, Greiner W. EQ-5D-Y as a Health-Related Quality of Life Instrument for Children and Adolescents: The Instrument's Characteristics, Development, Current Use, and Challenges of Developing Its Value Set. VALUE IN HEALTH. 2019;22(1):31-37.
Kreimeier, S., & Greiner, W. (2019). EQ-5D-Y as a Health-Related Quality of Life Instrument for Children and Adolescents: The Instrument's Characteristics, Development, Current Use, and Challenges of Developing Its Value Set. VALUE IN HEALTH, 22(1), 31-37. doi:10.1016/j.jval.2018.11.001
Kreimeier, S., and Greiner, W. (2019). EQ-5D-Y as a Health-Related Quality of Life Instrument for Children and Adolescents: The Instrument's Characteristics, Development, Current Use, and Challenges of Developing Its Value Set. VALUE IN HEALTH 22, 31-37.
Kreimeier, S., & Greiner, W., 2019. EQ-5D-Y as a Health-Related Quality of Life Instrument for Children and Adolescents: The Instrument's Characteristics, Development, Current Use, and Challenges of Developing Its Value Set. VALUE IN HEALTH, 22(1), p 31-37.
S. Kreimeier and W. Greiner, “EQ-5D-Y as a Health-Related Quality of Life Instrument for Children and Adolescents: The Instrument's Characteristics, Development, Current Use, and Challenges of Developing Its Value Set”, VALUE IN HEALTH, vol. 22, 2019, pp. 31-37.
Kreimeier, S., Greiner, W.: EQ-5D-Y as a Health-Related Quality of Life Instrument for Children and Adolescents: The Instrument's Characteristics, Development, Current Use, and Challenges of Developing Its Value Set. VALUE IN HEALTH. 22, 31-37 (2019).
Kreimeier, Simone, and Greiner, Wolfgang. “EQ-5D-Y as a Health-Related Quality of Life Instrument for Children and Adolescents: The Instrument's Characteristics, Development, Current Use, and Challenges of Developing Its Value Set”. VALUE IN HEALTH 22.1 (2019): 31-37.

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A DELPHI study on aspects of study design to overcome knowledge gaps on the burden of disease caused by serogroup B invasive meningococcal disease.
Marten O, Koerber F, Bloom D, Bullinger M, Buysse C, Christensen H, De Wals P, Dohna-Schwake C, Henneke P, Kirchner M, Knuf M, Lawrenz B, Monteiro AL, Sevilla JP, Van de Velde N, Welte R, Wright C, Greiner W., Health Qual Life Outcomes 17(1), 2019
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