Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients

Janssen IM, Gerhardus A, von Gersdorff G, Schaller M, Barth C, Scheibler F, Baldamus C (2015)
Patient Preference and Adherence 2015(9): 847-855.

Download
OA
Zeitschriftenaufsatz | Veröffentlicht | Englisch
Volltext vorhanden für diesen Nachweis
Autor
; ; ; ; ; ;
Abstract / Bemerkung
Background: Chronic kidney disease is an increasing health problem worldwide and in its final stage (stage V) can only be treated by renal replacement therapy, mostly hemodialysis. Hemodialysis has a major influence on the everyday life of patients and many patients report dissatisfaction with treatment. Little is known about which aspects of treatment are considered important by hemodialysis patients. The objective of this study was to rate the relative importance of different outcomes for hemodialysis patients and to analyze whether the relative importance differed among subgroups of patients. Patients and methods: Within the framework of a yearly questionnaire which is distributed among patients receiving hemodialysis by the largest hemodialysis provider in Germany, we assessed the relative importance of 23 outcomes as rated on a discrete visual analog scale. Descriptive statistics were used to rank the outcomes. Subgroup analyses were performed using Mann–Whitney U or Kruskal–Wallis tests. Results: Questionnaires of 4,518 hemodialysis patients were included in the analysis. The three most important outcomes were safety of treatment, health-related quality of life, and satisfaction with care. Further important outcomes were hospital stays, accompanying symptoms, hemodialysis duration, and the improvement or preservation of a good emotional state. Age, profession, and education had the strongest influence on relevant differences of preferences for outcomes; no relevant influence of sex or comorbidity was observed. Conclusion: Outcomes concerning the delivery or provision of care and aspects influencing quality of life are rated by patients to be at least as important as clinical outcomes. Many of the outcomes judged to be important by the patients are not regularly considered in research, evaluation studies, or quality programs.
Erscheinungsjahr
Zeitschriftentitel
Patient Preference and Adherence
Band
2015
Ausgabe
9
Seite(n)
847-855
ISSN
Finanzierungs-Informationen
Article Processing Charge funded by the Deutsche Forschungsgemeinschaft and the Open Access Publication Fund of Bielefeld University.
PUB-ID

Zitieren

Janssen IM, Gerhardus A, von Gersdorff G, et al. Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence. 2015;2015(9):847-855.
Janssen, I. M., Gerhardus, A., von Gersdorff, G., Schaller, M., Barth, C., Scheibler, F., & Baldamus, C. (2015). Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence, 2015(9), 847-855. doi:10.2147/PPA.S79559
Janssen, I. M., Gerhardus, A., von Gersdorff, G., Schaller, M., Barth, C., Scheibler, F., and Baldamus, C. (2015). Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence 2015, 847-855.
Janssen, I.M., et al., 2015. Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence, 2015(9), p 847-855.
I.M. Janssen, et al., “Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients”, Patient Preference and Adherence, vol. 2015, 2015, pp. 847-855.
Janssen, I.M., Gerhardus, A., von Gersdorff, G., Schaller, M., Barth, C., Scheibler, F., Baldamus, C.: Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence. 2015, 847-855 (2015).
Janssen, Inger M., Gerhardus, Ansgar, von Gersdorff, Gero, Schaller, Mathias, Barth, Claudia, Scheibler, Fueloep, and Baldamus, Conrad. “Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients”. Patient Preference and Adherence 2015.9 (2015): 847-855.
Alle Dateien verfügbar unter der/den folgenden Lizenz(en):
Creative Commons Namensnennung-Nicht kommerziell 3.0 Unported (CC BY-NC 3.0):
Volltext(e)
Access Level
OA Open Access
Zuletzt Hochgeladen
2017-03-22T12:21:03Z

7 Zitationen in Europe PMC

Daten bereitgestellt von Europe PubMed Central.

Patient involvement in clinical trials: motivation and expectations differ between patients and researchers involved in a trial on urinary tract infections.
Schilling I, Behrens H, Hugenschmidt C, Liedtke J, Schmiemann G, Gerhardus A., Res Involv Engagem 5(), 2019
PMID: 30984414
Burden of multimorbidity and outcome in ambulatory geriatric hemodialysis patients : Report from the QiN registry in Germany.
Röhrig G, Polidori MC, Rascher K, Schaller M, Benzing T, von Gersdorff G., Z Gerontol Geriatr 51(1), 2018
PMID: 27832329
Value-based evaluation of dialysis versus conservative care in older patients with advanced chronic kidney disease: a cohort study.
Verberne WR, Dijkers J, Kelder JC, Geers ABM, Jellema WT, Vincent HH, van Delden JJM, Bos WJW., BMC Nephrol 19(1), 2018
PMID: 30115028
Through the Patients' Eyes: The Experience of End-Stage Renal Disease Patients Concerning the Provided Nursing Care.
Stavropoulou A, Grammatikopoulou MG, Rovithis M, Kyriakidi K, Pylarinou A, Markaki AG., Healthcare (Basel) 5(3), 2017
PMID: 28754014

36 References

Daten bereitgestellt von Europe PubMed Central.

Chronic kidney disease as a global public health problem: approaches and initiatives - a position statement from Kidney Disease Improving Global Outcomes.
Levey AS, Atkins R, Coresh J, Cohen EP, Collins AJ, Eckardt KU, Nahas ME, Jaber BL, Jadoul M, Levin A, Powe NR, Rossert J, Wheeler DC, Lameire N, Eknoyan G., Kidney Int. 72(3), 2007
PMID: 17568785

AUTHOR UNKNOWN, 2012
End-stage renal disease
Abbasi MA, Chertow GM, Hall YN., 2010

Frei U, Schober-Halstenberg HJ., 2008
Chronic kidney disease and end-stage renal disease – a review produced to contribute to the report ‘the status of health in the European union: towards a healthier Europe’
Zoccali C, Kramer A, Jager KJ., 2010
Evolving importance of kidney disease: from subspecialty to global health burden.
Eckardt KU, Coresh J, Devuyst O, Johnson RJ, Kottgen A, Levey AS, Levin A., Lancet 382(9887), 2013
PMID: 23727165
A systematic review and meta-analysis of utility-based quality of life in chronic kidney disease treatments.
Wyld M, Morton RL, Hayen A, Howard K, Webster AC., PLoS Med. 9(9), 2012
PMID: 22984353

AUTHOR UNKNOWN, 2013
Patient satisfaction with in-centre haemodialysis care: an international survey.
Palmer SC, de Berardis G, Craig JC, Tong A, Tonelli M, Pellegrini F, Ruospo M, Hegbrant J, Wollheim C, Celia E, Gelfman R, Ferrari JN, Torok M, Murgo M, Leal M, Bednarek-Skublewska A, Dulawa J, Strippoli GF., BMJ Open 4(5), 2014
PMID: 24840250
Hemodialysis and peritoneal dialysis: patients' assessment of their satisfaction with therapy and the impact of the therapy on their lives.
Juergensen E, Wuerth D, Finkelstein SH, Juergensen PH, Bekui A, Finkelstein FO., Clin J Am Soc Nephrol 1(6), 2006
PMID: 17699347
Satisfaction of patients on chronic haemodialysis and peritoneal dialysis.
Wasserfallen JB, Moinat M, Halabi G, Saudan P, Perneger T, Feldman HI, Martin PY, Wauters JP., Swiss Med Wkly 136(13-14), 2006
PMID: 16633970
Haemodialysis patients' beliefs about renal failure and its treatment.
Krespi R, Bone M, Ahmad R, Worthington B, Salmon P., Patient Educ Couns 53(2), 2004
PMID: 15140459
Patients' experiences and perspectives of living with CKD.
Tong A, Sainsbury P, Chadban S, Walker RG, Harris DC, Carter SM, Hall B, Hawley C, Craig JC., Am. J. Kidney Dis. 53(4), 2009
PMID: 19216015
2005 Annual Report: ESRD Clinical Performance Measures Project.
Centers for Medicare and Medicaid Services, Kinney R., Am. J. Kidney Dis. 48(4 Suppl 2), 2006
PMID: 17045862
Patient satisfaction with care and behavioral compliance in end-stage renal disease patients treated with hemodialysis.
Kovac JA, Patel SS, Peterson RA, Kimmel PL., Am. J. Kidney Dis. 39(6), 2002
PMID: 12046037

AUTHOR UNKNOWN, 2013
Getting the methods right--the foundation of patient-centered outcomes research.
Gabriel SE, Normand SL., N. Engl. J. Med. 367(9), 2012
PMID: 22830434
A systematic review of patient-reported measures of burden of treatment in three chronic diseases.
Eton DT, Elraiyah TA, Yost KJ, Ridgeway JL, Johnson A, Egginton JS, Mullan RJ, Murad MH, Erwin PJ, Montori VM., Patient Relat Outcome Meas 4(), 2013
PMID: 23833553
A descriptive review on methods to prioritize outcomes in a health care context
Janssen IM, Gerhardus A, Schröer-Günther MA, Scheibler F., 0
Dialysis modality preference of patients with CKD and family caregivers: a discrete-choice study.
Morton RL, Snelling P, Webster AC, Rose J, Masterson R, Johnson DW, Howard K., Am. J. Kidney Dis. 60(1), 2012
PMID: 22417786
Recommendations in health technology assessments worldwide.
Draborg E, Andersen CK., Int J Technol Assess Health Care 22(2), 2006
PMID: 16571190
Epidemiology, contributors to, and clinical trials of mortality risk in chronic kidney failure.
Ortiz A, Covic A, Fliser D, Fouque D, Goldsmith D, Kanbay M, Mallamaci F, Massy ZA, Rossignol P, Vanholder R, Wiecek A, Zoccali C, London GM; Board of the EURECA-m Working Group of ERA-EDTA., Lancet 383(9931), 2014
PMID: 24856028
Dialysis-related factors affecting quality of life in patients on hemodialysis.
Anees M, Hameed F, Mumtaz A, Ibrahim M, Saeed Khan MN., Iran J Kidney Dis 5(1), 2011
PMID: 21189427
Characteristics of dialysis important to patients and family caregivers: a mixed methods approach.
Morton RL, Tong A, Webster AC, Snelling P, Howard K., Nephrol. Dial. Transplant. 26(12), 2011
PMID: 21482637
Factors influencing patient choice of dialysis versus conservative care to treat end-stage kidney disease.
Morton RL, Snelling P, Webster AC, Rose J, Masterson R, Johnson DW, Howard K., CMAJ 184(5), 2012
PMID: 22311947
Patient views about treatment of stage 5 CKD: a qualitative analysis of semistructured interviews.
Morton RL, Devitt J, Howard K, Anderson K, Snelling P, Cass A., Am. J. Kidney Dis. 55(3), 2010
PMID: 20116914
Using behavioural theories to optimise shared haemodialysis care: a qualitative intervention development study of patient and professional experience.
Glidewell L, Boocock S, Pine K, Campbell R, Hackett J, Gill S, Wilkie M; Yorkshire and Humber Shared Haemodialysis Care team., Implement Sci 8(), 2013
PMID: 24098920
Patient engagement in research: a systematic review.
Domecq JP, Prutsky G, Elraiyah T, Wang Z, Nabhan M, Shippee N, Brito JP, Boehmer K, Hasan R, Firwana B, Erwin P, Eton D, Sloan J, Montori V, Asi N, Dabrh AM, Murad MH., BMC Health Serv Res 14(), 2014
PMID: 24568690
A comparison of face to face and video-based education on attitude related to diet and fluids: Adherence in hemodialysis patients.
Karimi Moonaghi H, Hasanzadeh F, Shamsoddini S, Emamimoghadam Z, Ebrahimzadeh S., Iran J Nurs Midwifery Res 17(5), 2012
PMID: 23853648
Adherence in patients on dialysis: strategies for success.
Kammerer J, Garry G, Hartigan M, Carter B, Erlich L., Nephrol Nurs J 34(5), 2007
PMID: 18041450

Export

Markieren/ Markierung löschen
Markierte Publikationen

Open Data PUB

Web of Science

Dieser Datensatz im Web of Science®

Quellen

PMID: 26170634
PubMed | Europe PMC

Suchen in

Google Scholar