Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients
Janssen IM, Gerhardus A, von Gersdorff G, Schaller M, Barth C, Scheibler F, Baldamus C (2015)
Patient Preference and Adherence 2015(9): 847-855.
Zeitschriftenaufsatz
| Veröffentlicht | Englisch
Autor*in
Janssen, Inger M.;
Gerhardus, Ansgar;
von Gersdorff, Gero;
Schaller, Mathias;
Barth, Claudia;
Scheibler, Fueloep;
Baldamus, Conrad
Abstract / Bemerkung
Background: Chronic kidney disease is an increasing health problem worldwide and in its final stage (stage V) can only be treated by renal replacement therapy, mostly hemodialysis. Hemodialysis has a major influence on the everyday life of patients and many patients report dissatisfaction with treatment. Little is known about which aspects of treatment are considered important by hemodialysis patients. The objective of this study was to rate the relative importance of different outcomes for hemodialysis patients and to analyze whether the relative importance differed among subgroups of patients.
Patients and methods: Within the framework of a yearly questionnaire which is distributed among patients receiving hemodialysis by the largest hemodialysis provider in Germany, we assessed the relative importance of 23 outcomes as rated on a discrete visual analog scale. Descriptive statistics were used to rank the outcomes. Subgroup analyses were performed using Mann–Whitney U or Kruskal–Wallis tests.
Results: Questionnaires of 4,518 hemodialysis patients were included in the analysis. The three most important outcomes were safety of treatment, health-related quality of life, and satisfaction with care. Further important outcomes were hospital stays, accompanying symptoms, hemodialysis duration, and the improvement or preservation of a good emotional state. Age, profession, and education had the strongest influence on relevant differences of preferences for outcomes; no relevant influence of sex or comorbidity was observed.
Conclusion: Outcomes concerning the delivery or provision of care and aspects influencing quality of life are rated by patients to be at least as important as clinical outcomes. Many of the outcomes judged to be important by the patients are not regularly considered in research, evaluation studies, or quality programs.
Stichworte
preference elicitation;
patient-centered outcomes;
rating scale;
patient-centered research;
chronic disease
Erscheinungsjahr
2015
Zeitschriftentitel
Patient Preference and Adherence
Band
2015
Ausgabe
9
Seite(n)
847-855
Urheberrecht / Lizenzen
ISSN
1177-889X
Finanzierungs-Informationen
Open-Access-Publikationskosten wurden durch die Deutsche Forschungsgemeinschaft und die Universität Bielefeld gefördert.
Page URI
https://pub.uni-bielefeld.de/record/2763174
Zitieren
Janssen IM, Gerhardus A, von Gersdorff G, et al. Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence. 2015;2015(9):847-855.
Janssen, I. M., Gerhardus, A., von Gersdorff, G., Schaller, M., Barth, C., Scheibler, F., & Baldamus, C. (2015). Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence, 2015(9), 847-855. doi:10.2147/PPA.S79559
Janssen, Inger M., Gerhardus, Ansgar, von Gersdorff, Gero, Schaller, Mathias, Barth, Claudia, Scheibler, Fueloep, and Baldamus, Conrad. 2015. “Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients”. Patient Preference and Adherence 2015 (9): 847-855.
Janssen, I. M., Gerhardus, A., von Gersdorff, G., Schaller, M., Barth, C., Scheibler, F., and Baldamus, C. (2015). Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence 2015, 847-855.
Janssen, I.M., et al., 2015. Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence, 2015(9), p 847-855.
I.M. Janssen, et al., “Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients”, Patient Preference and Adherence, vol. 2015, 2015, pp. 847-855.
Janssen, I.M., Gerhardus, A., von Gersdorff, G., Schaller, M., Barth, C., Scheibler, F., Baldamus, C.: Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients. Patient Preference and Adherence. 2015, 847-855 (2015).
Janssen, Inger M., Gerhardus, Ansgar, von Gersdorff, Gero, Schaller, Mathias, Barth, Claudia, Scheibler, Fueloep, and Baldamus, Conrad. “Preferences of patients undergoing hemodialysis - results from a questionnaire-based study with 4,518 patients”. Patient Preference and Adherence 2015.9 (2015): 847-855.
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